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215
16
May
Want!
(Source: topshop, via lifeaficionada)
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5
14
DecLong Time No Type
I know I haven’t been keeping y’all up to date. I blame spending more time with my loving husband.
My last day of work is 12/30/11. I will then be filing for SSDI, which could take months, or years. This winter has been hard on me. Last night I cried while Bryce held me as nothing was helping the hand pain. I’m now up to 10/500 Hydrocodone/Acetaminophen every 4 hours. So far my liver seems to be holding up well. Other things not so much. Still severely anemic (Platelets are around 400) low red blood count, high white blood count, and my TSH (thyroid) dropped from being steady for 5 years at 3.71 to 1.86. Needless to say I am physically exhausted all the time, fatigued, shaky, and the anemia is causing horrible muscle aches. Like having the flu aches without having the flu. Our 9yo, Meridian, has pretty much taken over laundry. 14, Elizabeth, helps out as best she can. (those with autistic children will understand that statement)
I don’t know what else to say.
Right now my daily list is as follows:
1) Get up
2) Survive the day
3) Crawl back in bed
With lots of naps!
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96530
17
OctPurrfessor Meowmers.
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25
15
Octi hate it when friends are sad and you’re too far away to just give them a hug to comfort them because you’re so bad with words
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2
4
Oct
the owner of this shop is cool. oh, and probably a socialist. bastard. #sarcasm
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4
27
SepCOPIED BLOG POST TAKEN FROM DANCING WITH PAIN: I did not write this but felt I had to get this information out to as many as I could.
PLEASE READ AND SPREAD THE WORD : THANK YOU
http://dancingwithpain.com/spoonie-in-dire-straits-sharing-50-of-audio-class-proceeds-to-help/
I just found out that a fellow Spoonie (someone living with chronic illness) has been booted out of her home and abandoned by her family, which ended up with her living in a car on a street. Now she’s in a hospital, because she’s gotten even sicker. Her life is in danger, and she needs our help desperately. If you are following my blog, chances are that you are living with a lot of stress and financial difficulties yourself. But chances are that you also have at least $1 to spare, or that you can write a blog post or tweet to spread the word and get help from people with more resources. There IS something you can do. Rise up to the occasion, just as you’d wish others would rise up for you.
If you are following my blog, you also know that I came damn near close to being homeless this past year, myself. It’s amazing how an injury or illness can completely unravel our lives overnight and leave us horribly vulnerable. I have experienced the sheer terror that comes along with having no financial safety net and limited resources and a severely compromised ability to function. So I want to do what I can to help this fellow Spoonie, whose Twitter handle is @blairnboca. And I ask you to join me. Here’s what I’m going to do, and what I’m asking you to do:
1. She needs a physical address to set up a PayPal account. I commit to getting her a mailbox in her hometown, if they will accept payment by phone. If not, I’d like someone in Boca Raton, FL to get her the PO Box, and I will send the money to comp that person.
2. She needs money. So through the first week of October, I will share with Blair 50% of all sales of my audio class CD. It’s a win-win all around: You get to learn how to dance to heal your pain; I get support for my spreading this work to those who are suffering; and Blair gets the help she needs to get out of her car and get a damn roof over her head.
Also, a friend of hers will set up the PayPal account once I get the mailbox. Check back on my blog, or follow me on Twitter, to find out how you can send $1 or $5 or whatever you can spare. Seriously, every bit helps. Not only does it help with expenses, but it boosts morale and keeps one’s head up to know there are people who care enough to help, even if only a little. I know first hand.
3. We need to get the word out that Blair needs help. Blog about her situation, or cut and past my blog onto yours, if you don’t have the energy to write a new post. Tweet about it. Post on Facebook. Retweet (RT) posts on my Twitter account, which you can follow @dancingwithpain.com .
4. Send messages of love and support and encouragement to Blair on her Twitter account – @blairnboca.
Too many of us struggle alone. It doesn’t have to be that way. Social media connects us and empowers us to help each other. Let’s all tap into our hearts and spread the love. If only in the name of R’shana, the Jewish New Year, where we are taught to look deep within ourselves and ask how we can be better people, and how we can make the world a better place. Here’s an opportunity to start the year off right.
On that note, if you are involved in a religious organization – Jewish, Muslim, Christian, Buddhist, Pagan, whatever, please spread the word. Religious communities are ass-kicking organized and a great source of support when mobilized.
With love, peace, and blessings that we all may thrive, my hand in yours, your hand in someone else’s, all of us, together, never ever turning away from those in need, spreading a sense of dignity and well-being among us all. Tizkoo leshanim raboth unemoth, may we all merit numerous and joyful years.
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4
29
Aug
Heh, I like my outfit today. Wish I could find a skirt to match in the orange shade.
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3
20
Aug“It is said that some lives are linked through time, connected by an ancient calling that echoes through the ages.” Prince of Persia
This quote from Prince of Persia is how I feel connected to my husband. We’ve done this before, or so it feels, & we’ll do it again, in another life. Sometimes you do find your soulmate.
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1
12
AugSo the x-rays confirmed osteoarthritis (moderate: Stage 3) in both thumbs.
My thumbs are killing me today. Not sure why. All I’ve done is…
Peed (which involves using hands/thumbs to to raise/lower pants). Got dressed. Tweet. Made toast, with jelly. Made Dr. Pepper. Tweet. Write 14’s cleaning list. Tweet. Remove load from dryer. Move washer load to dryer. Restart washer. Hang 6 line dry items. Sorted two baskets. Matched 6 pairs of socks for hubs. Tweet. And now Tumblr.
Must be the tweeting? Cause all that other stuff is “normal housework”.
Was told last night that I just need to look harder for a part time job that I can do after December. That I must be capable of still working. If I did the above, in an hour and a half, and my thumbs are screaming, what could I possibly do for work?
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612
9
AugTHE COOT! SQUEE! *SPLORT* WAAAAANT!
WANT!!
(via Rare Sand Kitten Birth Gives Hope for Conservation - ZooBorns)
Look at these kitties! They wear sport socks! I need to cuddle them all, especially the big one there.
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I have been exchanging food with @merilizzie on twitter here and there.
Usually, when I send her...
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Eating Funyuns.
It’s like eating sour cream & onion rings.
Without the sour cream.
And with corn...
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It’s that time of day…. Nap time!
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Stepping sideways or backwards or maybe on the path...
I missed my crazy doc appt.
I haven’t...
